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Dexamethasone & Muscle Myopathy
Brain Tumor | Last Active: Feb 15, 2023 | Replies (9)Comment receiving replies
Hi Chochosana,
Thank you for sharing. 18 months ago, I had a tumor removed from my pituitary gland, which cause my adrenal gland not to produce cortisone. So, we are on Dexamethosone 1.0mg per day for cortisone replacement and are experiencing similar problems like you, e.g. a drug induced myopathy, where my legs are weaken and feel jello like. From my readings, all of these corticosteroids (Hydrocortizone, Prednisone & Dexamethosone) have this side effect (muscle myopathy), but Dexamethosone, which is fluorinated seems to have higher cases versus non-fluorinated like Hydrocortisone & Prednisone.
Like you we are posting, but have not found a path forward with our current endocrinologist. We are planning to change.
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Hi commone1. I have not been to an endocrinologist yet can’t get in, but I have done a lot of reading as I said, and they all treat the non-functioning adrenal gland, the same way with a little bit of a different corticosteroid and that’s all as far as I can tell. I talked to my rheumatologist today and she said since I can’t have surgery and have so many other problems, there’s nothing that can be done, except maybe a little bit of physical therapy to help me get some muscles that aren’t damaged stronger. I’m sure you’re much younger than I am. I’m glad you got the tumor out that I’m sorry that you’ve had this result. I am now 78 and I do not want to live like this. This is horrible, so good luck to you and if you find anything, give it a post.