← Return to Chronic Pain members - Welcome, please introduce yourself

Discussion

Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 16 hours ago | Replies (7051)

Comment receiving replies
@johnbishop

Hi Sue @sue15, Welcome to Connect. You are definitely not alone. You might want to checkout this discussion started by Rachel @rwinney --- Central Sensitization - please share your stories: https://connect.mayoclinic.org/discussion/central-sensitization-please-share-your-stories/.

Have your doctors suggested any treatments like a pain clinic?

Jump to this post


Replies to "Hi Sue @sue15, Welcome to Connect. You are definitely not alone. You might want to checkout..."

Hi there @sue15, welcome. I'm glad John brought me into the conversation. I'm sorry to hear you are struggling with central pain syndrome aka central sensitization syndrome (CSS). How long has it been?

It's difficult to know how to treat your body when it acts as a loud speaker due to hypersensitivity. Although I don't have arthritis, I was diagnosed formally with CSS after years of not understanding what was wrong. I went through a 3 year period where pain intensified from mitigating factors like neuropathy, migraine, eye disease. I very much can relate to having pain throughout my body and finding it difficult to exercise. There is a spiral effect that happens and its called the "cycle of pain". It includes behavioral and emotional changes, physical changes, insomnia, withdrawal, depression, anxiety, etc... the list goes on.

Do you mind sharing a bit more of your story and what approaches you've tried for pain management? What sort of team or support system do you have in your corner?