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Lost with no confirmation of NETs origin: Innumerable liver lesions

Neuroendocrine Tumors (NETs) | Last Active: Mar 31, 2023 | Replies (77)
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@pjsheridan2022

I see that you had PRRT in 2020 and it’s been stable since.
I will have my 4th PRRT treatment in 3 weeks. Wondering what grade tumors you have.
I’m hoping for a similar outcome.

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Replies to "I see that you had PRRT in 2020 and it’s been stable since. I will have..."
kellysg | @kellysg | Feb 15, 2023

My cancer is Stage IV, but I can't find anything about the staging of my tumor...

Is yours Carcinoid as well, or something else?

Hope you are doing well with the PRRT! I only experienced fatigue, which got worse with each treatment, and hair thinning, but not drastic enough I had to do anything about it. I also noticed my appetite was crazy, I was hungry ALL the time!

I just found out this morning that Mayo Clinic approved me for a second opinion. I want to make sure I'm on the best treatment plan, and my oncologist suggested I check with Mayo.

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