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Lost with no confirmation of NETs origin: Innumerable liver lesions
Neuroendocrine Tumors (NETs) | Last Active: Mar 31, 2023 | Replies (77)Comment receiving replies
Hi
My sugars dropped to 37 last July when I passed out in my car....found the Net in my pancreas
and lesions on my liver. I am being treated at Dana Farber..just had my 16th round of chemo..
so far thats the plan while it is working. Next scan in March.
The sugars are hard to manage,I wear a Dexcom to keep track of them so they dont get low.
I mix corn starch in my tea at night and eat an EXTEND BAR which has definitely helped me get'thru the night and no sugar issue.
Any questions please reply!!
Replies to "Hi My sugars dropped to 37 last July when I passed out in my car....found the..."
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Hats off to you doing 16 rounds of chemo. I’ve had 12 and have to take a break, I’m so weak I can barely climb the stairs to go to bed at night. Starting a maintenance program March.
Have you been able to eat? I can’t eat anything the last few weeks. I could eat fish chowder and cereal for a while but that won’t go down now either. Matallic taste in my mouth makes it impossible for me to eat.
Hopefully taking a break from the chemo will help.