Replies to I was on prednisone for 3 and half years the first time my PMR was diagnosed….

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Polymyalgia Rheumatica (PMR) | Last Active: Jul 28 10:05am | Replies (52)

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@johnbishop

I was on prednisone for 3 and half years the first time my PMR was diagnosed. There is another discussion you might find helpful:
--- PMR Dosages and Managing Symptoms:
https://connect.mayoclinic.org/discussion/pmr-dosages/.
I think the key to tapering off of prednisone is to manage the pain levels and listen to your body. My rheumatologist had me keep a daily log of pain level when I got up in the morning and the prednisone dose for the day. It helped me decided when and how to taper off. Each of us are different but my last six months of my first round with PMR I went back and forth between 1 mg and 1/2 mg prednisone (hate pill splitting!) until I was finally able to stop taking prednisone without a lot of pain.

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Replies to "I was on prednisone for 3 and half years the first time my PMR was diagnosed...."

mnmom1 | @mnmom1 | Feb 15, 2023

Yes I keep a journal of wt, heart rate (I seem to have a little tachycardia now and then), BP, blood sugar and pain.

Prednisone for 3 years???!! Oh my! I don’t know if I can do that. I didn’t like the PMR pain but these side effects from prednisone are not very fun either.

I’m more worried about the long term use of the prednisone. I have a new diagnosis of MGUS so I need to watch for symptoms of any progression. The prednisone may mask those sx and I need to know where I’m at with all that encompasses.

Found the MGUS with blood work for the PMR.

I keep asking why me? Try to live a clean life, I don’t drink it use illegal drugs, try to be healthy and live a positive life.

Thanks for the response.

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