Hello all,
I am a 50 yo female diagnosed in Nov 2022 with stage 1 grade 1 net which they initially thought was appendicitis. Now, PET Dotatate shows tumor on ovary and another in vaginal cuff. These tumors are described as aggressive various tests show following growth pattern on the ovary: 11/8/22- 4.2 cm right ovarian cyst
12/27/22-4.7x6cm
1/10/23. 7.3x6.2
1/21/23. 9.4x7.6

Currently I am experiencing symptoms that are making daily life difficult. Surgery expected in next few weeks just waiting to schedule. I was just wondering what experience any of you might have had with aggressive growth and/or NET in female reproductive areas? Doctors aren't speaking to prognosis, and the information I find online varies from death in 10 months to chronic condition that may be life long?