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Mine just started about a month ago and am working with a neurologist who is bringing in a cardiologist, as through a heart monitor, they discovered that I have a slight afib in my heart. The neurologist is convinced that the issue is that the afib is restricting sufficient blood flow to my brain which causes the hemiplegic migraines. Through MRI's and CT scans, they have ruled out any clogged vessels in the brain, so it is the heart not getting sufficient blood to the brain. They have me on Topomax which has slowed down my symptoms significantly, blood thinner (to prevent clots forming in the heart due to the afib), and keeping my blood pressure up as well as my pulse, which gets a bit low at times.
One test I'm not looking forward to is a sleep deprived EEG. I have to stay awake all night, then go in the next morning for them to put on the EEG cap and let me go to sleep. Not sure if I can stay awake all night, although there are nights I feel like I stay awake anyway.
Hope my comments help and let me know if you have more questions. On a positive note, to take something from Chrysler commercials, "We have a Hemi in us!"
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Lol. Hey, does that thing have a hemi?
Thank you so much for your reply. I truly appreciate it. As for the a fib, I did have a two-week heart monitor that I was wearing and there is nothing of any sort of an issue with my heart so that has been ruled out. As for the EEG ,I had that and it showed no signs o of Seizures, etc. And you really don’t have to stay awake all night, not at all. You just have to be kind of tired so you can fall asleep for about 20 minutes. If you think you can do that, I wouldn’t stay awake all night. I had no trouble falling asleep. That’s me personally. The longer it takes for you to actually fall asleep for about 20 minutes, the longer it will take for the test to be completed. As for the bright lights, your eyes are closed but my gosh are they bright. It doesn’t hurt you so nothing to be afraid of. They are just unbelievably bright. It’s not like looking into the sun with your eyes open. As for MRIs and CT scans, I have no clotting. I’ve been through all of that and it sounds like you’re going through it now yourself. It is interesting that you mentioned that medication, I do understand it may help. But just an hour ago I deleted the information I had on that medication because I decided I didn’t want to take it. The reason for me is because a lot of the potential side effects are exactly what I’m experiencing and if I take that medication I won’t know if I’m having side effects or still experiencing my symptoms.
Let’s stay in touch!!!