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HPV P16 positive cancer

Head & Neck Cancer | Last Active: Mar 26, 2023 | Replies (107)

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@anybody10

My tongue cancer was caused by HPV16. My recommended treatment is chemo therapy and 35 radiation treatments. I had my first chemo treatment yesterday. I had my radiation mask made covering my head down to shoulders. This was the worst thing that's happened to me since being diagnosed with tongue cancer. I have claustrophobia and I started freaking out. Near the end of the mask run through I started trying to get the mask and mouthpiece out and calling for help. Finally that was over only to be told I had to do this one more time. I explained about my fear to the nurse who basically said nothing can be done just do it. Since my treatments will probably start in two weeks I have made requests for a sedating drug such as valium. I was flatly turned down and said it's only 5 minutes deal with it. I can tell you after that 1st day (yesterday) I was physically shaking and could barely walk. Unfortunately this was the one day I did not come with my husband. I am dreading my next radiation treatment. Did anyone out there have similar experiences and if so what did you do?

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Replies to "My tongue cancer was caused by HPV16. My recommended treatment is chemo therapy and 35 radiation..."

Hi. I went through the same treatment. Fortunately for me I’m not claustrophobic. I can tell you that the treatment did last only about 5-7 minutes and the table does shift slightly to give the radiation the exact location where to concentrate the waves. Amazed that they won’t prescribe something as I have heard other patients have been. I pray that you get something to aid you and wish you the best.

Many of us have gone through this.
Though I’m not claustrophobic I don’t like being held down but here’s the thing; relax, keep positive thoughts, be convinced that there is no other option and confident that this procedure will kill that crap!
Don’t know what your beliefs are but I prayed for comfort to be upon you!

MOJO

My boyfriend freaked out from the mask as well!! His Drs gave him a prescription for Ativan to help him & it worked like a charm! I’m very surprised the Drs won’t help you with this!