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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
After three years of treatment, I am a female taking 2 mg. of Prednisone daily. I thought I was ready to reduce the dosage to 1 mg; however within days my back was painful and stiff. I went back to 2 mg. and I am very slowly improving.
Very concerned about being on Prednisone long term.
I have regular blood tests and they have been quite good.
I am hoping to learn from others who have taken Prednisone long term.
Replies to "After three years of treatment, I am a female taking 2 mg. of Prednisone daily. I..."
Been on pred since 2013 with PMR then GCA. Take 6 for adrenals. Then got Covid. Went up to 20 now on 12.5. Still with muscle pain and fatigue. I realize this is more of an explanation than my first one. Hope this helps.
My doctor had me reduce by .5 mg when I got down that low.
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It is worrisome being on prednisone for long periods. I am at 26 months on prednisone and recently had to go up to 3 mg from 1 mg as i became very symptomatic again, and my chemistries were elevated . I was very disappointed by the regression but feel much better at 3 mg and will try tapering again. I am "doing everything right" and felt let down by medicine and my body, but I am learning to trust the process, let go, get on with life, and let this disease burn itself out. This forum and the contributors are a wonderful source of support and information. It has greatly shaped my treatment plan. While everyone's experience is unique, there are so many valuable tidbits to be gleaned from others. Good luck