← Return to Dexamethasone & Muscle Myopathy

Discussion

Dexamethasone & Muscle Myopathy

Brain Tumor | Last Active: Feb 15, 2023 | Replies (9)

Comment receiving replies
@chochosana

I am experiencing prednisone induced myopathy. I was on it for more than 10 years and 10 mg plus when I had episodes of information that we could use nothing else for I was allergic to NSAIDs and pain pills when I look back I can see when it started and how it’s almost exactly like the medical articles explain. The only thing I’ve been able to do for it is to adjust to being a paraplegic because both my knees are bone on bone and I can’t have surgery so between the knees and the fact that my Hamstrings have come off of the bone completely with many of the smaller tendons I don’t expect I’ll be able to walk much longer. I am currently using a walker. I can’t do a dose of prednisone because I’m still on 5 mg. I too have no adrenal function, so I’m going to an endocrinologist as soon as I can. Because of my age and my other comorbidities, I won’t be having any surgery and I don’t suspect there’s anything else that can be done, I’ve done a lot of reading. I used to be a nurse, and I can’t figure out anything else other than adjusting to it. Not good, huh?

Jump to this post


Replies to "I am experiencing prednisone induced myopathy. I was on it for more than 10 years and..."

Hi Chochosana,
Thank you for sharing. 18 months ago, I had a tumor removed from my pituitary gland, which cause my adrenal gland not to produce cortisone. So, we are on Dexamethosone 1.0mg per day for cortisone replacement and are experiencing similar problems like you, e.g. a drug induced myopathy, where my legs are weaken and feel jello like. From my readings, all of these corticosteroids (Hydrocortizone, Prednisone & Dexamethosone) have this side effect (muscle myopathy), but Dexamethosone, which is fluorinated seems to have higher cases versus non-fluorinated like Hydrocortisone & Prednisone.
Like you we are posting, but have not found a path forward with our current endocrinologist. We are planning to change.