Devastated by neuropathy

Hello @pakora, Welcome to Connect. We are just patients like yourself. We can share experiences and what's helped us but can't give medical or legal advice if that is what you are looking for. Can you share a little more about what you mean by neuropathy caused by carelessness of a practitioner? What are your symptoms, when did they start?

I'm sorry to hear that. It sounds like maybe this happened recently? First off try to calm yourself and not overwhelm yourself with negative thinking. I understand your feelings of devastation. But try not to think about the future too much, especially if it's scary and negative thinking. Hang in there and live one day at a time and one minute at a time. There is hope for you. Take care. Go on you' tube and look up either GOOD VIBES or NINAD music for Nerve Regeneration and healing. Listen to it and try to relax. I have neuropathy and it's a bummer but living in the present moment is what keeps me sane and at peace.

Thank you for suggestions Mrs, Ryan

Hi @son1zab, Welcome to Connect. Have you been diagnosed with neuropathy also?

Mid 2018-Stage 3 advanced prostate, radiation nerve damage to colon/rectum and penis . Lupron start 7/18, 2yrs shots every 6 months, 36 radiation treatments to prostate and 9 to groin=total 45. Start 9/6/18. Glaucoma left eye, eye press.37, surgery, shunt, bleb, 10/22. Feet on fire as well as colon/vault and tears in my eyes to pee burn so bad. My little man’s foreskin went from pink to brown, that’s a sensitive place, that and the eye. Thanks

Welcome @treetop, I know it has to be difficult dealing with side effects and treatments from advanced prostrate cancer. Have your doctors suggested any treatments to help with the neuropathy side effects?

Cancer is not there now per doctors, psa0.06

But neuropathy is intensifying and the pain is non stop. Doctors say take B vitamins (complex). B1 in bentofida

That's great news that the cancer is not there now @treetop. Have you discussed the neuropathy side effect symptoms with your doctor? Just wondering if they have suggested anything to provide some relief.

Are the B vitamins helping? The Foundation for Peripheral Neuropathy has some complementary and alternative treatments that might be worth looking into -- https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf