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Diagnosed with sarcoma? Let's share
Sarcoma | Last Active: 23 hours ago | Replies (788)Comment receiving replies
When I was trying to do research for my mom, it was VERY hard to find research on sarcomas. I think because they are so rare? There is only one sarcoma specialist in Indiana, and we didn't know anyone with her type of sarcoma (leiomyosarcoma). I'll be praying for you! I know this is such hard news. It was for my mom, and it was for me - her only child.
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Hello My name is Bonnie, I new in this support group and my needle biopsy report said I have leiomyosarcoma, which is very rear sarcoma. Just looking for treatment plan and facilities others used. I waiting on oncology consult and appointment.
God be with us all.
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I think I may be very lucky in that we are only 1-2 hours south of Emory in Atlanta. My oncologist was described to me as a surgical specialist in osteo sarcoma. I am 78 and remain hopeful but not naive and if necessary I will contact Anderson specialists in Jacksonville Florida. I'm so sorry for you and your mother. It must surely have been heartbreaking for you both. I'm only now beginning to realize the impact this will have on my family. I have chosen not to reveal any of this until I have a much better understanding of my options if any. If I can remain positive and upbeat it will certainly be much easier on them. Thanks again for your prayers. God in His wisdom will carry me thru.