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@change25

Sorry for the lack of communication. I took a prolonged break from the Internet primarily for my mental health and it has definitely helped. As for an update, I've been having treatment for chronic fatigue syndrome which has been helpful, however one of my clinicians noticed some unusual traits. It was then that the rheumatologist partially diagnosed me with Elhers danlos syndrome. I'm now waiting on a geneticist to determine a type which I have.

After researching EDS everything now clicks. All of the odd and unusual symptoms have a source. Even though it's only a diagnosis and not a cure it is such a relief as a couple of medical practitioners were suggesting it was of a psychotic nature.

What I will say is we are our best advocates, if you know something isn't right you must pursue and research until you find the source.

Thanks to everyone who participated in the post - your guidance was invaluable, many thanks again.

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Replies to "Sorry for the lack of communication. I took a prolonged break from the Internet primarily for..."

Great news! It IS such a relief to get a name for the darn things! Hope your future treatments work well for you!

@change25. Oh, I am so glad that you finally have a diagnosis! Whether it’s good or bad, it’s still a diagnosis and something that you can work with.
How is the rest of your life going?