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Orthostatic Tremor

Brain & Nervous System | Last Active: Oct 14 8:31pm | Replies (26)

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Profile picture for ellenshe @ellenshe

I have been taking small doses of Clonazepan- special compounded in a liquid since I am a side effects queen.
If I try to up the dose as my doctor advises, the tremors get worse (I also have essential tremors)
Has anyone else had the experience with a med that is supposed to help and just makes things worse?
Thanks

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Replies to "I have been taking small doses of Clonazepan- special compounded in a liquid since I am..."

My doctor prescribed Clonazepan when I fell into a depression in the fall of 2018. The first week I took it, it seemed to help. Two weeks later and I was shaking and feeling unstable. I took it for 4 weeks and then stopped abruptly - bad idea. Worst addiction ever and that was for a very short period. The results were that lingering feeling of unsteadiness, not being able to do normal standing things like most people. I have been coping, but now my hands are shaking also. I did not know it was a tremor until this summer; I thought it had something to do with my balance and ears. I went to see a neurologist at the beginning of this month and he confirmed I have an Orthostatic tremor as well as an Essential tremor. I told him that this all started when I took Clonazepan, I did not have any tremors or signs of tremors before taking that drug. The neurologist said it might just be coincidence. I am now trying Gabapentin, but wow, I feel constantly high and sleepy.

@ellenshe
Clonezapam does not work for me. my orthostatic trimmer came when I got Guilian Barre Syndrome from a stomach virus. it will be three years ago in November 2025. It took about a year to diagnose the OT. It took eight months to get into a neurologist. I see him in a couple days to see what else I can take. He told me they used to give lorazepam for it but they are not prescribing it like they used to.
I noticed that when I take lorazepam for the MRIs, I had to take during my bout with GBS made OT better. it could be because it calmed me down and made it easier to deal with. I don’t know, but I’m going to talk to him about it. I haven’t taken gabapentin yet, but I’m really not in pain.