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Scared - Suspected NET on tail of the pancreas

Neuroendocrine Tumors (NETs) | Last Active: Mar 13, 2023 | Replies (47)
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@rockchick

Thanks I did. My surgeon at Memorial Sloan Kettering is an expert on NETs and the robotic surgery, so was blessed.

You were lucky, there was no pain. I was in CRAZY pain and on painkillers for 2 weeks and have a fistula now, so drain still in. I am still recovering 3 weeks later...

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Replies to "Thanks I did. My surgeon at Memorial Sloan Kettering is an expert on NETs and the..."
lu7 | @lu7 | Feb 14, 2023

I'm so sorry for the long pain! I had my drain for about a month. Uncomfortable, but lucky for sure. Be sure to keep up with the follow up scans. I skipped and delayed because my husband had heart surgery, and I was "too busy". When I finally got around to it, 6 months late, I had 30-40 metastasis in my liver that were growing fast. Best wishes for your recovery!

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