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Scared - Suspected NET on tail of the pancreas
Neuroendocrine Tumors (NETs) | Last Active: Mar 13, 2023 | Replies (47)Comment receiving replies
Thanks all! Had the surgery on January 24th, 2023 and Doctor was right. It was a non-functioning neuroendocrine tumor. Fortunately, a bit smaller than previously thought - 1.6cm. They got it all and took the tail of the pancreas while preserving the spleen. (If you can, push for that as many oncologist surgeons just want to take your spleen because it is easier. But they don't always have to and safer to have a spleen with all the potential pandemics coming.)
There was no spread. Have to be checked every few months for a while.
Though mine was robotic surgery, it was a lot more painful than they said it would be. Due to a small fistula, I am also still on a drain 3 weeks later, so not thrilled about that. But reminding myself that at least they found it early and got it out. I DO have a bit of "scan-xiety" now though. Need a mammogram and am afraid.
Replies to "Thanks all! Had the surgery on January 24th, 2023 and Doctor was right. It was a..."
Very good news that there wasn't any spread. I also had a fistula after my Whipple surgery, which healed on its own at four months. Hopefully yours will heal quickly. Wishing you well on your recovery.
Hi rockchick. Congrats on your successful surgery. I can understand that you are scanned out.
I had a wipple procedure in March 2019 which went very successful; they caught everything and I was back to work in 3 months, living the rest of my life on Creon and Omeprazol.
Unfortunately at my last scan in Dec 22 they found liver lesions, now confirmed as NET tumor. Did not have a scan for 2 years due to work / covid but I wish I had.
Found this forum on my research for my first oncologist appointment on Feb 27. Thanks a lot for all the info which is very helpful.
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Oh. and I also have an amazing team at Memorial Sloan Kettering in NYC. I was also blessed to be in a Penthouse suite for a week after surgery because there were no other rooms left and then I tested positive for Covid. I was initially devastated by that but then realized it was God's way of giving me extra time with 24-7 care to heal, so Covid diagnosis ended up being a hidden blessing.