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Spinal fusion of C1-C6

Spine Health | Last Active: Mar 17 9:50pm | Replies (85)

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@jenniferhunter

@hodinator Good morning, Robert. You have a great mindset for healing. Patients have real power if they believe that they will have a good outcome. Being a good patient goes a long way to build a relationship with the surgeon, and I think that is essential. Your mind set for managing pain is great. I had to do that also and calm my emotions about it in order to stay in control. All my life, I had feared pain, and the fear of it makes it worse and more powerful. You don't have to give power to your pain, and you can become your own coach. I had been practicing deep breathing to music to lower my blood pressure along with visualization of beautiful images, so I had a method to be able to lower pain a bit, and prevent escalating it with fear.

I had been dismissed by 5 surgeons prior to coming to Mayo who didn't understand that the pain I had all over my body was being caused by spinal cord compression, and none would help me. I was reading the published literature of surgeons I was interested in, and when I found a paper talking about leg pain being caused by cervical spinal cord compression co-authored by a Mayo surgeon, I looked up a term in that paper and found case reports like mine for something called "funicular pain". This is what I thought had confused a lot of surgeons, so I wrote to this surgeon at Mayo and asked to be his patient.

You're right. My experience as a Mayo spine surgery patient is the reason I am here on Connect, and I was asked to be a mentor. I chose my surgeon at Mayo because I knew he would understand my symptoms because his name was on medical literature that discussed similar symptoms. There is a little bit more to my story because I am an artist, and I was loosing my ability to hold my arms up to be able to work on my paintings. When we met, I asked Dr. Jeremy Fogelson if I could do some sketches of him to help calm my fears because I like things I paint, and I needed to like him so I could place my trust in him. He said yes, and posed for a couple pictures, and he offered to help me.

Here is the story.
https://newsnetwork.mayoclinic.org/discussion/using-the-art-of-medicine-to-overcome-fear-of-surgery/
The other surgeon I was considering was Dr. Bydon. He is doing research on regeneration after spinal cord trauma and has had some success with that. Other patients tell me that he is also excellent.
https://www.mayoclinic.org/biographies/bydon-mohamad-m-d/bio-20147826
I recommend Dr. Fogelson a lot, and his bio speaks volumes about his accomplishments, and he is very personable and kind. He has praised me for being here on Connect to help patients.
https://www.mayoclinic.org/biographies/fogelson-jeremy-l-m-d/bio-20055624

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Replies to "@hodinator Good morning, Robert. You have a great mindset for healing. Patients have real power if..."

Good morning, Jennifer!

I hope you are well today.

Yesterday, I actually had a great day. I cannot remember the last time that happened. Motegrity finally arrived and it is already kicking in. I have zero stomach pain. My neck pain is still about a seven but I will take it!

I want to thank you again, not only for answering my questions but for sharing about your own story. I love that you were able to first of all recognize your fear, and then do something about it. You were very creative in utilizing your art background to help you overcome it. Use every skill in my power to overcome the fear and the pain itself. If I could get through this without any narcotics, that would be a blessing. That is my goal. On the other hand, I know that should I find the pain to be unbearable, temporary narcotics use is an option.

What you write is full of Vital Information, and like I said I am an information guy. I'm going to review all of the links this morning, but wanted to acknowledge your reply first. Both surgeons that you have recommended are interesting. I'm particularly interested in Dr Bydon because of his work in regeneration and that is where I will need to make the most progress.

I am so hopeful again. I called yesterday and verified that the CT scan had been received. I am going to a third party provider to pick up the MRI from last month and I'm sending it by Priority Mail today because they cannot do a push.

Do you think that I will be able to go for the evaluation be offered the surgery appointment and get the surgery done all in one trip to Mayo? They already have complete access to my chart where the majority of my records are. I am getting a report from my cardiologist about preoperative status. I've already done an EKG, a CT angiogram, and an echocardiogram. He may order a chemical stress test. I will know that today. After that, they should have everything they need to proceed with the surgery immediately. Nobody here has ever mentioned a nerve study. I'm pretty sure Mayo May order one.

I hope you have a great day! I will return later after I have reviewed everything.

Thank you, again, and God bless you!

Robert