What all have you tried? Have you only seen a regular gi or an actual motility specialist?
I’ve been at this full-time now nearly four years and I totally feel your pain and frustration. I have consulted a colorectal surgeon who has agreed to an ileostomy, but honestly just sounds like a whole new group of issues. Still need bathrooms to constantly empty bags, very limited diet, awful gas.
So the motility specialist I’m with now is willing to work a little “outside the box”. I’m on Bethanichol which is normally prescribed for urine retention but can help with gi motility. I take 20 mg three times a day. One hr before breakfast, in afternoon and at bedtime. Had to work up to this. Then, when no help, added in Amitiza. Currently taking 2- 8 mcg a day. Also, worked up to this. If I miss a day with no BM, I take some mineral oil at bedtime. Few days, 1 Senoket. So far, this regimen seems to be working better than anything else I’ve tried. Oh, also, 2 IB Guard everyday. Not sure why, but helps with left sided abdominal pain. I have also just done pelvic floor therapy with biofeedback as the CRS felt that was part of my issue. Totally unpleasant experience. Have you been tested for pelvic floor dysfunction? I have mixed feelings about whole thing.