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@bonnie48

Hi Merry. My partner has Alzheimer’s Disease. We’ve only been together 21 years, & I continue to struggle with what to say & not say in moments like the one you describe. Ron is a very bright, independent guy & hates any hint that I’m taking care of him. So I try to focus on conveying respect in his ability to work things out for himself. I say, I’m sorry to hear that. Do you want to talk about it? Or, Oh hon. That must be hard. Can I help?
That approach works better for us. You must know how your husband prefers a way that you two talk that is comfortable for him. It’s tricky for me to express compassion that doesn’t sound like I am mothering him, but I’m learning from the dementia community that it is important to affirm our partner’s dignity & ability to care for themselves.
I sense that you know how to do this & will use your experience & communication skills to know what to say in your case.

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Replies to "Hi Merry. My partner has Alzheimer’s Disease. We’ve only been together 21 years, & I continue..."

Hello Bonnie- Thank you for saying this. I still sound like a commando sometimes when I need him to do something. I am not a patient person. I have to bite my lips to help me slow down so I don't put pressure on him too much. I am also complimenting him and I also apologize if I screw up.

Today was one of those days! Dave couldn't find his keys- I can't get him to settle down when I want to organize all of his important things long enough to make a decision as to where to put his "box" of things. I'm on prednisone right now so it's more difficult to hold my tongue. So, I got into "it" a bit with Dave. In the end, he answered me with a little boy's "no!"

Well, I lost it and began to laugh uncontrollably. Now mind you, I am usually a very loud laugher but it seems that when I laugh at something that Dave says or does (now)- at the ridiculousness, my laugh is a more mature type of laugh, not at all hysterical. But I couldn't stop laughing but I had to run into the bathroom. which I didn't make. Then one of my thighs cramped up and I couldn't sit down! And then I laughed even harder. And then I cleaned the bathroom! lol

He was upset, and I know he was and I would have been too but some things are just so ridiculous when they happen. If he hadn't had vascular Dementia he would have been howling. Laughter is such a great outlet that I don't want to lose it between us. I immediately explained what it was all about and he thanked me for that.

I hope that this doesn't upset anyone, this silly tale of mine about laughter. I take Vascular Dementia, any type of neurological disease very seriously. But right now, before things get too bad I can't help myself. I think that it is a tension valve.

Does any one else experience this?

We still have the capacity to laugh together and I love that. He'll joke too. I love those times.