← Return to Lost with no confirmation of NETs origin: Innumerable liver lesions

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@kellysg

I, too, have metastatic innumerable liver lesions, as well as in my pelvis, lymph nodes, and shoulder. My primary was a carcinoid tumor wrapped around my small intestine. I have been on Sandostatin, and now Lanreotide to help control the side effects of carcinoid syndrome. I also underwent 4 rounds of PRRT in 2020. This treatment helped stabilize everything, and I haven't had any growth or new lesions/tumors since the treatment.

Every prognosis is different. Do research and advocate, making lists of questions as you go. Take someone with you to your appointments to help you 'listen' and write down important things as it can be an overwhelming experience. And above all else, keep a positive attitude!

Hugs to you on your journey!

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Replies to "I, too, have metastatic innumerable liver lesions, as well as in my pelvis, lymph nodes, and..."

I see that you had PRRT in 2020 and it’s been stable since.
I will have my 4th PRRT treatment in 3 weeks. Wondering what grade tumors you have.
I’m hoping for a similar outcome.