Finally! I am self diagnosing myself as hemiplegic migraine because the doctors here don’t seem to know anything about it. I have had a few strokes, but they are not the cause of my symptoms. I do not have MS. But through investigation, I’ve discovered the only other thing so far that can cause numbness on 1/2 of the body, plus an unbelievable amount of other symptoms, is what is called a hemiplegic migraine. I have also seen it referred to as a full body migraine. It’s been progressing for four years, and it was terribly frightening not knowing what the heck is going on. After four years of doctor visits, and all sorts of testing, even the psychological test, I’ve come to the conclusion by myself that it’s hemiplegic.

I don’t know if you are still on this forum, but I would love to talk more about this with you. I’ve been so alone through all of this. It’s unbelievable what is taking place in my family life.

Again, I have not been officially diagnosed because no one around here has even heard of it or acts like they’ve heard of it. My symptoms are getting greater and progressing. They vary from one to another. I have not felt 100% in a long time. If you’re still following your posting please respond, I would appreciate it. Thank you