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Anyone have a neuroendocrine tumor (NET) in the spine?

Neuroendocrine Tumors (NETs) | Last Active: Oct 23, 2023 | Replies (56)
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@andy2020

Thank you for sharing part of your journey.
Im told I cant have surgery as Ive had radio therapy twice in the same area and Im told by my oncologist with having radio therapy the surgeons wont operate as the previous treatment would have made it to complicated.
So, the treatment Im on is to reduce the tumours as much as possible then keep them stable.

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Replies to "Thank you for sharing part of your journey. Im told I cant have surgery as Ive..."
kim1965 | @kim1965 | Feb 15, 2023

@andy2020
That sounds like a good plan. It has worked so far for us too. The only thought I had, is your cancer care team/oncologist a NET's specialist? Obviously, I'm not a doctor, but in viewing these forum posts for 9 months, the advice I keep reading about is make sure a NET Specialist is part of your team, and if not, don't be afraid to get a 2nd opinion. I wish you well in your journey to fight NET. Be strong, and keep in touch.

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