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HPV P16 positive cancer

Head & Neck Cancer | Last Active: Mar 26, 2023 | Replies (107)

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@smittyfromcuse

My HPV+ cancer was diagnosed Nov 2022 when I had a lump on the left side of my neck. Biopsy was inconclusive so had surgery to remove it and came back positive for cancer. Next step was a left modified neck dissection which removed 32 lymph nodes all negative. Had exploratory robotic surgery at the same time which identified the primary tumor in the left tonsil. A month later a full TORS ( trans oral robotic surgery) to perform a radical tonsillectomy and remove tissue from the base of my tongue. That was 5 weeks ago and I’m now exploring options for radiation to my neck and chemo due to the original spread to one lymph node. The surgery was a success and there were clear margins so all the tumor was removed. Also my NavDx blood test came back clear which indicates no tumor remains. I’m back to eating most foods with the help of a speech therapist and looking for the radiation treatment best for my situation that will have the least side effects. Please know that HPV cancer is very responsive to treatment and while the treatments are tough the outcomes are very positive.

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Replies to "My HPV+ cancer was diagnosed Nov 2022 when I had a lump on the left side..."

It is amazing how many people have very similar issues to mine. Throat cancer to radiation/chemo to neck dissection to throat damage from radiation to feeding tube to recovery to ongoing treatment. It is helpful to know that others have gone through it so there s a process and experience. My cancer is chronic, but your testimonies keep me positive.