Hi @hopeful33250
Again, thank you for message! Your information about your NETs all being in the same area, and your having no carcinoid activity / symptoms, is very helpful. It's wonderful that yours didn't spread and were discovered and treated.

My son is waiting for his doctor's referral to the NET specialist in Portland that we are hoping to see.

Your offer to keep communicating about this is such a comfort - thank you!

Rebecka