Anyone else have a Redundant / Tortuous Colon?

At a loss as to what foods to eat can’t find much on it. I was told a couple of weeks ago to join a class but they have not contacted me yet.

I am same but also going to give a try, but maybe at a slower pace.
1 cup applesauce, 1 cup oat bran, 1/4 cup prune juice. Spices as desired. Cinnamon, nutmeg, etc. May be stored in frig or freezer (ice cube trays). Begin with two TBSB each evening followed by 6-8 ounces of water or juice. After 7-10 days increase to 3 TBSP. and then at end of second to third week increase to 4. You may have bloating and gas at beginning but should go away after few weeks. Should see improvement in bowel habits in two weeks. With us, though, who knows!!! As always, proceed with caution. I’ll probably start with one.
Thanks for your good thoughts in my journey!

I was told at my last 2 colonoscopy's (every 5 years due to my mother passing away from colon cancer at age 44) that I have a redundant/tortuous colon along with diverticulosis. The surgeon just says it and then walks away. Never an explanation of what it means. So I go home and research. I am 60 and suffered from constipation most of my adult life but it progressively gets worse. When I went to a GI doctor in Jan 2020, he said I have a lazy bowel and prescribed Linzess. I had tried all OTC meds that would work for a short time and then stop. Linzess has been the same. It worked for about a year, 72mg, then I went up to 145mg and I still take that but have to add Miralax and or Milk of Magnesia or laxatives. I have only ever gotten diarrhea (sometimes 6 a day) but at least I'm getting something out. So recently I went to see my Gastro docs PA. I cried during the appt about how this effects my life. I am sick of waiting half the day and nothing comes out or spending half the day running to the bathroom. I asked if this is what my life will always be. The doctors have never given me a clear answer. The PA had compassion (for once) and prescribed me Lactulose 2X day and upped the Linzess to 290mg. The problem is nothing works consistently! I can't spend the rest of my life around my BM schedule! But for now, that's what I'll have to keep doing. She also sent me for a Colonic Transit Study. I started that 3 days after my appt with her so I had to stop all constipation meds for 7 days. The first day they gave me the Sitz marker pill. The next 5 days in a row I had to be at the hospital the same time each day for an x-ray. The study showed all 24 markers on day 1, 24 on day 2, 24 on day 3, 19 on day 4 and 9 on day 5. The PA wrote back to me on MyChart, after I inquired what the next step is, that I should make an appt with my colo/rectal surgeon to see what he can do. She said I need to find a motility specialist. After all of my research on here and other websites and forums, I do not have high hopes that this will ever be fixed. I have already been through a small bowel resection due to peritonitis in 2006 from a doctor nicking my bowel during a tubal ligation surgery. I've had a hysterectomy in 2016, a partial small bowel obstruction in 2018, and breast cancer in 2020. Other then that, I'm pretty healthy! Lol.
I just thought writing in here maybe someone can relate and offer a suggestion. I have not made an appt with my colorectal doctor yet. None of this is cheap either due to our high deductible insurance. We pay 100 percent until $9100 deductible is met. Yikes, that's a lot of money! I'm sure you can all relate to this also.
Anyway, thanks for reading my long post. I empathize with all of you!!

My heart goes out to all of you that have a redundant colon ! Our 5 year old son has that too , his colon is twice as long as it should be we finally found out when we took him to Mexico for more test ! Cuz here in Canada the docs. Kept saying all is normal ! and he’s suffered so much already no matter what diet we try ! Becuz if a colon is too long it has sharp bent areas where not even water can get through sometimes ! And one part of his colon goes way up over his stomach and when it presses on his stomach when there’s stool in there he very often can’t eat for a day or 2 etc. we have found out what helps a little bit for his colon to not get enflamed to often is plexus brand probiotic ,
Why are doctors refusing to take out some colon ?? In Mexico we found such a nice specialist who found the problem and gave us antibiotics for his very bad enfection in colon and another kind of pills to help stimulate his colon to push the stool through, but he said if that did’t help he’d need some colon taken out ,
Anyone out there that has had that surgery done ??
Should we get this surgery done for him in Mexico by that very wise specialist in Mexico ??

Hi there, my understanding is bile breaks down fat. The pancreas creates bile and sends to the gallbladder to store. The gallbladder releases when you consume fat. When the gallbladder is removed the pancreas still creates bile but has no where to store and drips it into the intestines slowly. I was suffering every time I ate anything high in fat. A hamburger, steak, loaded baked potato are examples. I would be up all night. Now that I take enzymes, I can pretty much eat anything. As a footnote, I had my gallbladder removed when I was 30 and now 60. Never had a problem until I hit 50. Hope that helps and is clear. I am frustrated with conventional doctors as they all knew I had my gallbladder removed and ordered endoscopy’s but never once discussed enzymes or probiotics with me.

Hey which enzymes do you take. Thank you for sharing this with me.

ZenWise Digestive Enzymes with Prebiotics and Probiotics.

My gastro doctor has recommended I have a bowel resection due to chronic bouts of diverticulitis and diverticulosis. The last bout I had left me badly inflamed and in pain and tenderness long after the infection had cleared. I am hopeful this intervention will rectify this problem, which is a by product of my redundant colon. Anyone out there had bowel resection surgery?

Has anyone with severe motility issues had a colectomy? If yes, could you please share your experience? Did it help?
Are your issues worse?
Thank you,
JN

My heart goes out to all of you that have a redundant colon ! Our 5 year old son has that too , his colon is twice as long as it should be we finally found out when we took him to Mexico for more test ! Cuz here in Canada the docs. Kept saying all is normal ! and he’s suffered so much already no matter what diet we try ! Becuz if a colon is too long it has sharp bent areas where not even water can get through sometimes ! And one part of his colon goes way up over his stomach and when it presses on his stomach when there’s stool in there he very often can’t eat for a day or 2 etc. we have found out what helps a little bit for his colon to not get enflamed to often is plexus brand probiotic ,
Why are doctors refusing to take out some colon ?? In Mexico we found such a nice specialist who found the problem and gave us antibiotics for his very bad enfection in colon and another kind of pills to help stimulate his colon to push the stool through, but he said if that did’t help he’d need some colon taken out ,
Anyone out there that has had that surgery done ??
Should we get this surgery done for him in Mexico by that very wise specialist in Mexico ??