What's your NETs treatment and surveillance protocol?

Posted by frenchmustard @frenchmustard, Jan 28, 2023

had surgery in june 2021 for a net in my intestine which had metastasized to my colon. surgery was successful with subsequent blood work and scans, to this point revealing "no evidence of disease." i can relate more about the schedule of my surveillance regimen but are there any specific general protocols that are used? do surveillance protocols vary by facility or should they be roughly the same?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

@dbamos1945

Hi! I am also getting 4th mo SamotulineDepot injections due to small intestine NET primary with metastasis in liver. Question: about 2 weeks after shot a wave of depression hits me hard for about a week. Have you experienced this?

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Yes I do.

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