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Welcome @snuggles45 and @nestlechocolatebar, I can't begin to imagine how difficult it must be to deal with all of the symptoms and worry about the future when you have an arachnoid cyst. There is some information you might find helpful on the National Organization on Rare Disorders (NORD) site here: https://rarediseases.org/rare-diseases/arachnoid-cysts/.
@jeep and @kyoto may have some experience or thoughts they can share on managing or treatment options for arachnoid cysts.
@snuggles45 - You mentioned not being able to get into Barnes in St. Louis, MO. Have you thought about seeking help at a Mayo Clinic Care Network member that might be close to you? Here is a map with locations of members - https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members.
@nestlechocolatebar - Have you thought about getting a second opinion or seeking help at a teaching hospital or major health facility like Mayo Clinic?
@snuggles45 - You mentioned not being able to get into Barnes in St. Louis, MO. Have you thought about seeking help at a Mayo Clinic Care Network member that might be close to you? Here is a map with locations of members - https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members.
@nestlechocolatebar - Have you thought about getting a second opinion or seeking help at a teaching hospital or major health facility like Mayo Clinic?
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Thank you for the article link. Unfortunately I dont live in the United states so wouldnt be able to go to the mayo clinic but I do want to ask to see a neurologist and perhaps get another mri. Its hard as doctor not worried, which is good news however the Articles I've read said arcanoid cyst in the brain can grow in size and can cause rupture or bleed and I also read an article that said there's a possibility of brain damage I'm having so many terrible neurological symptoms numbness and tingling pain brain fog difficulty learning information difficulty retaining information weakness and many more my doctor feels that this has nothing to do with the brain cyst I am not a doctor I trust and value the doctor's opinion but I have multiple concerns and I hope that it can get investigated further because maybe the symptoms I'm having are from the brain cyst I don't like when things are ruled out without investigation I appreciate so much you taking the time to send me the article link it's nice to know that there are others perhaps going through the same thing but I wish that wasn't the case I'm hoping anybody here that has a brain cyst gets the help that they need and please keep me updated