@rockchick
I'm sorry about your diagnosis of NET on the pancreas. As your aware, none of us are doctor's, we generally share information to hope even one part will help the next person to gets some form of NET. Our story is similar to yours, with a mass found on the tail of the pancreas, in April 2022, we were devastated at first, but our oncologist and are own research showed if your going to get cancer, NET's is very beatable, as you will see monitoring this Forum. In our case, we were referred to the Cancer Care Team at Froedert Hospital in Milwaukee, that has a multi-disiciplinary team including NET Specialists (a must) to help you in your battle with NET. They recommended for my wife since she had the mass on the pancreas and too many tumors on the liver to count, to immediately start chemo (pill version) and to evaluate after 3 cycles, and 6 cycles. At both marks her tumors were greatly reduced by up 50% or more. In addition, she is on monthly injections of Lanreotide. It was recommended to continue a few more cycles to get the tumors as small as possible. Now she has surgery scheduled for March 1st, to remove mass (70%) reduced, and they will try to get as many of the remaining tumors on the liver (about 20) as they can (about 70% reduction also), to give her a very good chance to live decades longer and only deal with it on a maintenance type situation. So the key info is get a NET Specialist, there is so many different methods to fight NET's, we are forever grateful to our team to get her this far, with a good prognosis for the future.

Thank you so much. I did.