Thank you for asking. The symptoms can be very very difficult to describe. In fact, most of them are undescribable. It’s been a four year journey, so I’m just gonna kind of go to where I’m at now. Amongst so many symptoms let’s start with a predominant left side numbing, deep on the inside from the very tip of my head down to my groin into the foot. The entire left side can go numb. It may progress to my entire body. I’ve had a couple strokes, but this is not a result of the strokes, the doctors have assured me that , I get this sensation that tends to feel like restless leg syndrome to my entire left side. my hands and ankles can get tingly intensely and also my whole entire body. The symptoms come and go separately or together they start gradual and dissipate or get very intense. There is no rhyme or reason and how the symptoms progress or dissipate. I don’t lose strength I don’t lose coordination. My vitals are generally very good. As I’m speaking this text, I can sense. The left side of my mouth is numb. That’s it in nutshell but believe me, it’s not as simple as what I’ve just described I’ve done everything from making sure my vision is correct all the way up to a four hour neuropsychological exam And several MRIs and a few trips to the ER. On top of other types of testing if it’s a standard test in a standard city I’ve had it I’ve had extensive bloodwork. I couldn’t tell you what all they checked for but it was extensive. I’m going to leave it at this right now , although I wonder if anyone out there has been diagnosed with hemiplegic or full body migraine. The doctors around here in Grand Rapids Michigan looked dumbfounded when I mention hemiplegic migraine or full body. They don’t have a clue what leads me to that is that it is the only other thing I can find that explains 1/2 of my body going numb. The doctors in this area don’t even address that , being on the Internet, watching television, reading tend to be triggers. I see tends to be triggers. Although it can come and go whatever it wants but these so-called triggers can intensify it. So I’m speaking this text without actually looking at it so that it doesn’t mess with me. And I apologize in advance for any difficult things that you might be seeing on this that I cannot correct thank you.
Looking at me, as a rule, you wouldn’t have a clue of what I’m going through. Any given moment.