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How to live with Primary Sclerosing Cholangitis (PSC)

Digestive Health | Last Active: Jun 29, 2013 | Replies (6)
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@rosemarya

Yes, I took ursodiol when I had PSC. And I was told to eat a 'heart healthy' diet. I never had pain when eating, but I dealt with repeated bouts of indigestion and nausea.

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Replies to "Yes, I took ursodiol when I had PSC. And I was told to eat a 'heart..."
donnadpw | @donnadpw | Jun 28, 2013

So you don't have PSC no more. I know I have indigestion and nausea as well as pain.

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Rosemary, Volunteer Mentor | @rosemarya | Jun 28, 2013

Sorry for the confusion. The way I understand It: PSC is a disease that affects the bile ducts of the liver. When I received my liver transplant, my damaged liver and bile ducts were removed. My transplanted liver does not have the disease. So that is why I say "had".
I am healthy now, but I have not forgotten what it is like to live with the fears and discomforts of PSC.

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donnadpw | @donnadpw | Jun 29, 2013

that is okay I am glad you explain more in detail about it. I know my husband told me the doctors told him I had a severe infection. So I must be past stage one.

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