← Return to Anyone have a neuroendocrine tumor (NET) in the spine?

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@andy2020

The Tumour in my spine is my secondary cancer I have unknown primary.
I have had this condition for 3 years and they now believe my primary is located in my right lung but is stable.
For the 3 years i took 'Everolinus' but now that has stopped working so i take;
Capecitabine 500mg for 14 days then 14 days rest
Temozolomide 450mg for the last 5 days of the 14 days and then rest for 14 days.
That completes 1 cycle.
Hope this helps

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Replies to "The Tumour in my spine is my secondary cancer I have unknown primary. I have had..."

I have an unknown primary NET maybe intestines
It has metastasized to my liver periportal lymph node and now the L1 of my spine
I am going to start Everolimus
I see you took for 3 years
Any information you can share on dealing with the side effects I would greatly appreciate
Thank you
Good luckb