Is anybody dealing with an angiosarcoma?

But no treatments

Unfortunately it’s still the waiting game. Waiting for a lung biopsy. Radiation caused the cancer so that doesn’t sound like a realistic option, even though high doses apparently are effective , my understanding is that surgery is the best alternative for AS. Not sure how lung metastasis fits in with all this. Is surgery a possibility. I’m sure it boils down to every case is different. The waiting game is so stressful!

Sorry to hear you are dealing with this as well. As rare as it is suppose to be, there seems to be a lot of it. Glad you are in surgery mode as the waiting game is so painful and surgery seems to be the best alternative. What country do you live in? Good luck with your upcoming surgery. You’ve got this 🙏

@posi9, thinking of you as you ride out the wait.

@jbeck7406, just a quick note to wish you well with your post surgery recovery. I hope you'll write an update on how you are doing when you're able.

I’m clear of Angiosarcoma as of now !
I’m curious if anyone has had Angiosarcoma in the breast without having /had radiation therapy due to a breast cancer prior?
I have never had cancer or radiation before and ended up with lump on breast and biopsy showed Angiosarcoma so I’m confused.

I live in Nebraska and sometimes I wonder, but they did send my biopsy originally to the mayo clinic for pathology review , I’m trying to get second opinion overall at the Mayo currently just waiting to hear back from them . I don’t know why it’s taking so long

I also have angioscarcoma and was cancer free until about a month ago. I had chemo, radiation and several surgeries, 5 years ago. I have recently had a biopsy on my head that showed angioscarcoma, luckily no metastasis. I was wondering how your family member's surgeon was able to cover the scalp after removal of the sarcoma. Any information you can provide would be greatly appreciated.
Hopefully she continues to do well. Sounds like she is an amazing women and survivor.

My Angiosarcoma, which was diagnosed in 2019 was radiation induced..........caused from cancer surgery in 2006.

I was diagnosed with Angiosarcoma in my liver on October 26th 2022. Started Taxol chemotherapy in November and get my 13th infusion tomorrow. No known cause for mine but my mother's side of the family had an uncle and first cousin pass from Angiosarcoma in the heart. November 22 prognosis from Kaiser Permanente oncologist was maybe 9 to 12 months with chemotherapy.. less than 6 months without.