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Anyone have a neuroendocrine tumor (NET) in the spine?

Neuroendocrine Tumors (NETs) | Last Active: Oct 23, 2023 | Replies (56)
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@hopeful33250

Hello @andy2020

I would like to put you in contact with other members of the NETs discussion group on Mayo Connect. We do have members who have NETs and have experienced NETs in the bone as a result of metastasis.

Is this your situation as well or is the spine NETs your first experience with NETs? I'm also wondering what type of scans you have had that revealed the NETs in the spine?

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Replies to "Hello @andy2020 I would like to put you in contact with other members of the NETs..."
andy2020 | @andy2020 | Feb 13, 2023

I first started with a pain in my upper back at the centre, I had every scan you could think of, CT, MRI, PET, Calium scan, the list is endless.
But they still couldn't make their minds up what i was suffering from, so eventually I had a biopsy, By this time the pain was unbearable, I was begging them for help, so they gave me radio therapy and told me then that i had a secondary caner in my spine and all these scans were trying to locate the primary but without success.
Hope this helps?

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