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Anyone have a neuroendocrine tumor (NET) in the spine?
Neuroendocrine Tumors (NETs) | Last Active: Oct 23, 2023 | Replies (56)Comment receiving replies
Hi @andy2020, is the tumor the primary tumor or a metastasis of the original location? What treatment are you having?
Replies to "Hi @andy2020, is the tumor the primary tumor or a metastasis of the original location? What..."
Hi Colleen,
Thank you for your reply.
The tumour on my spine is a secondary cancer, I have an unknown primary.
I have had this condition for 3 years i was initially on 'Everolimus' but that has now stopped working so I'm now on ;
Capecitabine 500mg for 14 days then 14 days rest
Temozolomide 450mg to take for the last 5 days of the 14days and then to rest for 14 days that completes 1 full cycle.
Only on my 3rd cycle so not sure if they are working?
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The Tumour in my spine is my secondary cancer I have unknown primary.
I have had this condition for 3 years and they now believe my primary is located in my right lung but is stable.
For the 3 years i took 'Everolinus' but now that has stopped working so i take;
Capecitabine 500mg for 14 days then 14 days rest
Temozolomide 450mg for the last 5 days of the 14 days and then rest for 14 days.
That completes 1 cycle.
Hope this helps