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Neuroendocrine Tumors (NETs) | Last Active: Nov 29 1:22pm | Replies (429)

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@carversmom

Happy to have found this support group! I have a near 6 cm paraganglioma from my left adrenal gland that’s lying on my aorta among other major vessels. I have a near 2 cm pheochromocytoma on my right adrenal gland, as well as a 4 mm nodule on my right lower lobe. I live in a very small town and can’t find a specialist near me & I’m so scared!

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Replies to "Happy to have found this support group! I have a near 6 cm paraganglioma from my..."

Get in you car and get to a hospital that specializes in cancer.
Have your primary doctor if you have one get a referral if your insurance company needs one.