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How to advocate for a hysterectomy after treatment

Gynecologic Cancers | Last Active: Feb 12, 2023 | Replies (3)
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@alwaysalright

Endometria.
I was in a screening program for women over 40 and did colposcopy every 6 months with no concerns. Then boom I had cancer and it went from early stage to a stage 3 in a month. I know they are not sharing all info. They cancelled the hysterectomy on December 12 and said the petscan showed it spread to lymph nodes. My treatment plan is 5 weeks everyday radiation and 5 weeks every Friday chemo. I’m on cysplatin. I’m really struggling with nausea, diarrhea and brain fog headaches and cramps. On February 21 I am going g to the hospital for 3-5 stay for the brachytherapy. A little anxious about that part of the plan. Any suggestions? Thank you so much.

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Replies to "Endometria. I was in a screening program for women over 40 and did colposcopy every 6..."
sallyr | @sallyr | Feb 12, 2023

I'm just making this up, but perhaps since it spread so fast they felt they should hit it with the quickest things right away.
The hysterectomy is not like cutting your fingernails; it's big surgery and can beat your body up for a long time. I had surgery for ovarian cancer first because they were not positive It was actually cancer; but then couldn't start chemo for a month, till I had somewhat recovered from the surgery.
I'm guessing they must think that the radiation is at least as good as surgery for eliminating the solid tumors.
And it appears to be compatible with starting chemo very quickly, And your body won't be beat up from surgery at least.
I know the urge to get that bad stuff right out of there is really strong, But it might actually not be the most effective if there's already cancer in the lymph nodes. Your treatment plan sounds really rough; you don't want to throw the debilitation of surgery in with that.
Have you asked about having a hysterectomy after you have recovered somewhat from the radiation and chemo?
You deserve clearer answers; keep asking.

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