It is truly unfortunate that there aren’t more doctors familiar with methods that would work for Dercum’s. The Herbstaffiliated articles (including “Standards of Care” could inform willing /curious practitioners — our favorite kind— who may be willing to help.I’ve also had 3 VERY uncomfortable abdominal lipomas removed (actually 2 angiolipomas - is this a vEDS thing?).
Dercum’s definitely does cause generalized inflammation and many suffer from Mast Cell Activation Syndrome so I’m continually on a variety of MCAS inhibitors (Wikipedia lays out the different classes, Drs. Maitland and Afrin both have good info on MCAS).
Following a lower inflammation diet is recommended as well.
This. Definitely. ISN’T. Easy. ❤️‍🩹