@kellysg

If you are looking for a NET specialist, here is a link from the Carcinoid Cancer Foundation (CCF) that might be helpful,
--Find a Doctor
https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
As you can see, Mayo has several doctors who specialize in NETs and I hope that you can be seen there. If an appointment is not available with Mayo, you can always use the list of doctors in the link I posted from the CCF.

If there is not a specialist within a reasonable distance from you, you can also consider a virtual appointment. Often, renowned cancer centers (sometimes connected with university medical centers) can be a good place to find a specialist as these centers are research-oriented and have good treatment outcomes.

I look forward to hearing from you again. Will you post again and let me know how you are feeling?