Replies to I have had GCA since 12/20. Once the inflammation is under control, look at alternative meds….

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Polymyalgia Rheumatica (PMR) | Last Active: Nov 3, 2023 | Replies (50)

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@khmc

I have had GCA since 12/20. Once the inflammation is under control, look at alternative meds. I started Actemra
with prednisone after 4 months gradually reduced prednisone to 0 in Oct 21. I chose Actemra as it is a biologic because I do not tolerate meds well, There are other options but steroids can cause bone loss etc so not something I wanted to stay on indefinitely. I am reducing Actemra gradually now one dose every 14 days. My rheumatologist does not feel I can go off meds completely at this time.

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Replies to "I have had GCA since 12/20. Once the inflammation is under control, look at alternative meds...."

artist01 | @artist01 | Feb 12, 2023

@katclub and @khmc:
My story is exactly the same as yours, @khmc, except that my GCA began in 2019 and was confirmed with biopsy, plus partial loss of sight in right eye.
I'm still on Actemra too, with injections every 14 days, following about a year of Prednisone.
Stick with your Rheumatologist, @katclub, and hang in there. The Prednisone will have you feeling much better for now, and your Rheumy might switch you over to the easier Actemra in the future.
I'm feeling almost normal these days!
Warmest wishes, Laurie

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