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I hope this is the right place to ask my questions. My daughter's B6 is has been going up and is now 234 and she never took supplements, drank energy drinks or vitamin water. I don't know if this is related but her Folate is higher then the machine can read and her B12 is 1832.
She has spasms, fatigue, the ends of her fingers and toes have no feeling, hands and feet feel like pins are poking her, her hands shake a lot. Her depression and anxiety have gotten worse. Her vision gets blurry and fuzzy, zones out, looses time and feels dizzy and foggy brain.
She has seen two Neurologists, both who have said there is nothing they can do but have not given an explanation of how her B6 is so high and what it affects in her body.
Is this B6 toxicity? Any recommendations if it is? Thanks for reading! Janet
Replies to "I hope this is the right place to ask my questions. My daughter's B6 is has..."
There are MTHFR genes that will cause B6 levels to be high in blood but low in the cells, They are CT(677C>T) and AA(1298A>). I have one and I am in the midst of trying to figure whether supplementation or the gene is causing my neuropathy(like your daughter's) suffering. The problem is that too low B6 or too high B6 levels will cause the same symptoms. There is a blood test and saliva test for the gene. Read more at easy-immune-health.com. I hope this helps.(the .com has no . after it. That was just a period)
It is not totally impossible that food can cause high b6. If your daughter doesn't eat a balanced diet this could cause very high b6. Is she eating a very high red meat or seafood diet? Perhaps keto? There is a free on line APP cronometer where you can log everything she eats, drinks, to check for high b6. Salmon, bananas, potatoes, pistachios, avocado in excess could cause high b6. Also ck ALL supplements such as magnesium and melatonin for hidden b6. I hope you find the answer. Also is her ALP low? There is some correlation of high b6 and low ALP but not clear what it is.
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Welcome Janet @bradljaa, I know it's difficult to watch your daughter suffering and not being able to get the help and answers to provide some relief. Here are a couple of references that might be helpful for understanding what may be going on:
--- Linus Pauling Institute - Micronutrient Information Center: https://lpi.oregonstate.edu/mic/vitamins/vitamin-B6. From what I've read, her symptoms seem similar to B6 toxicity.
--- Vitamin B6: https://www.hsph.harvard.edu/nutritionsource/vitamin-b6/.
From what I've read it's pretty difficult to get too much B6 through eating. You mentioned that your daughter has seen two neurologist and neither can explain why her B6 is so high and if it's related to her symptoms. Have you thought about seeking help or a second opinion at a teaching hospital or major health facility like Mayo Clinic?