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@contentandwell

Hi, @windyshores My endocrinologist wants to start with a half dose, slow infusion. I think the slow infusion is not related to it being a half dose, I think that's simply because it causes fewer side effects than a faster infusion, but I could be wrong about that. I thought she was checking with my transplant team but apparently she expected me to do that. When I finally realized that I sent them a message but haven't heard back yet. I stopped Tymlos a little over a month ago so I really want to get moving on something that will preserve my gains.

I did 23 months on Tymlos. Part of my reason was that if I wrapped around to a 24th month I would have a very large deductible to meet and my doctor did not feel it would make enough difference to do that extra month. Also, although I had no side effects for a long time I developed very achy leg muscles and joints after being on Tymlos for a while - it took more than a year for that to develop.
JK

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Replies to "Hi, @windyshores My endocrinologist wants to start with a half dose, slow infusion. I think the..."

My doc is having me do only 18 months and that is what patient assistance pays for. Hmmmm. I will do 1/4 dose also with slow infusion. Yes, the slow infusion is supposed to help with immediate side effects.

Interesting that you have muscle and joint pain after a year. I just went to the orthopedist this morning for that reason!

You are ahead of me....I look forward to hearing what happens!