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DiscussionLong Time Survivor With Concerns re Metastasis
Neuroendocrine Tumors (NETs) | Last Active: Oct 5, 2023 | Replies (38)Comment receiving replies
Replies to "Yes, I will post after I have talked with the hematologist. Thank you for your support!"
I saw the hematologist. She recommended that I go to MD Anderson for review and possibly PRRT treatment, because, she said, she does not have the original 2010 pathology report from my treatment at Mayo. My current seratonin level was 1236, and my 5HIAA test was low, which seemed odd, she said. My Chronagranin A level was very high. Apparently I cannot get into MD Anderson for several months, and I am very concerned about postponing treatment that long. Even though my doctor suggested MD Anderson, I think I am going to reach out to Mayo Jacksonville tomorrow to see if they can give me an idea of how soon I can get in there. Thanks for listening to my frustration!