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Lanreotide Manufacturers: anyone have experience with either?

Neuroendocrine Tumors (NETs) | Last Active: Mar 18, 2023 | Replies (53)
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@hopeful33250

Hello @kellysg and welcome to the NETs discussion group on Mayo Clinic Connect. I appreciate your comments about your journey with NETs and the treatments that you have tried. It sounds like you have been proactive in trying different treatments and keep seeking answers.

I'm sure you are glad that everything has stayed "stable" and nothing new has shown up.

I see that your Chromogranin A (CgA) is higher than usual. As you probably know there are many reasons for this phenomenon. Is your doctor concerned about the rise in CgA levels?

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Replies to "Hello @kellysg and welcome to the NETs discussion group on Mayo Clinic Connect. I appreciate your..."
kellysg | @kellysg | Feb 10, 2023

My Chromogranin has never been out of normal range. It's not very high out of normal, but my serotonin keeps rising as well.

At my follow up appointment after my labs and scan, I asked my doctor if there were any carcinoid specialists on staff that he consults with, and there isn't. That's when he told me a second opinion might be good.

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