Anyone Else Have Mild Dementia?

Posted by carolee888 @carolee888, Jun 25, 2022

About two weeks ago, my neurologist told me that I have Mild Dementia. He gave me an appointment for 6 months, upped the dosage on one of my prescripions and that was it. I am thinking, now what do I do?

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@emyliander

I didn’t know where else to put this note.
Back in May a person by the name of Carolee answered my post, and believe it or not, I just read it. I had been writing about mini strokes and she had some questions.
I find myself frequently having difficulty keeping up with my life. My son and wife visited tonight and he was trying to help me wade through 1000 + emails on my phone. Well I’m down to about 14 emails and Carolee’s was one he left.
I feel very bad about not seeing her email and therefore not answering it. I tried to answer her post but a message said something about the link not being valid or words to that effect.
I don’t know if you have a way of passing this on to her, if you do, thank you.
We had a busy summer, my husband had surgery on his big toe, the recovery process was slow, he got an infection in it, back in the hospital for IV antibiotics, then he was having pain in his left shoulder and right rib cage, X-rays showed two blood clots in his lungs and fragments elsewhere, so he was back in the hospital for a few days where they also discovered he had A-fib, so after wearing a heart monitor for 2-3 weeks which was negative, they still said he needed to be on Eliquis for the rest of his life—expensive stuff!
So that’s partly to blame for my missing her email.
Wishing you all well Emyliander.

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Welcome back @emyliander. I found the discussion where you and @carolee are connected and were chatting and moved your post to the discussion here:
- https://connect.mayoclinic.org/comment/721200/

I'm sure Carolee will see your message and pickup the thread again.

Actually, sometimes taking a while to respond can have its benefits. This post can be a spark to reanimate this discussion with you, Carolee, @artscaping and @centre. As September slowly finds it way into October, I wonder how everyone is doing moving into Fall and preparing for Winter?

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@emyliander

I didn’t know where else to put this note.
Back in May a person by the name of Carolee answered my post, and believe it or not, I just read it. I had been writing about mini strokes and she had some questions.
I find myself frequently having difficulty keeping up with my life. My son and wife visited tonight and he was trying to help me wade through 1000 + emails on my phone. Well I’m down to about 14 emails and Carolee’s was one he left.
I feel very bad about not seeing her email and therefore not answering it. I tried to answer her post but a message said something about the link not being valid or words to that effect.
I don’t know if you have a way of passing this on to her, if you do, thank you.
We had a busy summer, my husband had surgery on his big toe, the recovery process was slow, he got an infection in it, back in the hospital for IV antibiotics, then he was having pain in his left shoulder and right rib cage, X-rays showed two blood clots in his lungs and fragments elsewhere, so he was back in the hospital for a few days where they also discovered he had A-fib, so after wearing a heart monitor for 2-3 weeks which was negative, they still said he needed to be on Eliquis for the rest of his life—expensive stuff!
So that’s partly to blame for my missing her email.
Wishing you all well Emyliander.

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Hi Emylainder,
I received your post. A whole lot has happened to your husband since May. I hope for your continued support from your son and his wife. And for the best for your husband's health.

On 9/9/22, after a hard rain, we were told to evacuate from our apartment. The Fire Department was there and we only had a few moments to gather up some things and our pet bird to go to a motel. Two days ago, I was able to get my laptop and deleted 1,790 e-mails. We call every few days and they tell us when to call next. We are still taking it day by day in the motel room. Thank you for your update. It is good to touch bases with you.

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@carolee888

Hi Emylainder,
I received your post. A whole lot has happened to your husband since May. I hope for your continued support from your son and his wife. And for the best for your husband's health.

On 9/9/22, after a hard rain, we were told to evacuate from our apartment. The Fire Department was there and we only had a few moments to gather up some things and our pet bird to go to a motel. Two days ago, I was able to get my laptop and deleted 1,790 e-mails. We call every few days and they tell us when to call next. We are still taking it day by day in the motel room. Thank you for your update. It is good to touch bases with you.

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Routine does help but on 9/9/22, we were evacuated from our apartment. The whole 3rd floor, 8 couples and a few elderly singles, we all had to pack quickly and make it to an apartment. We get updates often but miss the many comforts of home. They say that they will pay for the motel fees and will feel better when we get reimbursed and if we are able to return!

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I just finished reading all the posts, but I do not think I belong here. I am much older than most of you. Tomorrow is my birthday. I will be 88 years old. I have noticed that I lose words. I thought this might be dementia, but after a while they come back again, so maybe it isn't. I have had a very rough time lately. Just over a year ago my husband of 59 years died. Shortly thereafter I had to have a complete hip replacement. I now have no fear of going to Hell when I die because it could not be worse than the "skilled nursing facility" I was sent to. I really have no idea how I survived it. I had my last physical therapy session last Wednesday. I have exercises I am supposed to do every day. Next appointment with ortho is January, 2023.

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@carolee888

Hi Emylainder,
I received your post. A whole lot has happened to your husband since May. I hope for your continued support from your son and his wife. And for the best for your husband's health.

On 9/9/22, after a hard rain, we were told to evacuate from our apartment. The Fire Department was there and we only had a few moments to gather up some things and our pet bird to go to a motel. Two days ago, I was able to get my laptop and deleted 1,790 e-mails. We call every few days and they tell us when to call next. We are still taking it day by day in the motel room. Thank you for your update. It is good to touch bases with you.

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Hey there @emyliander and @carolee888, hello again. Greetings. How nice to see those names again. And, as soon as I saw them together my memory clicked with joy. It sure does seem like you both have had some pretty heavy issues with which you have been dealing. Have you noticed any improvement in your cognition?

Just wondering if either of you is seeing a therapist specializing in memory issues. I did participate in several hours of testing and am now waiting for a therapist who has an opening. My life partner and my daughter attended the culmination appointment. Jay was very impressed with the new testing that was used and the many facets that were measured. Now he helps me gently at home.

How was summer for you? Did you travel, garden, or entertain? I have been busy with our chipmunks. We have a new one who is quickly learning the routines. We also had great summer visits with grandchildren at one of the 10,000 MN lakes.

Have you heard from @centre?

May you have happiness and the causes of happiness.
Chris

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I too have been diagnosed with MCI. I am having a great deal of trouble managing anything— remembering appointments, losing(misplacing ) things many times every day, inability to be organized or to have a sense of being in control of my life. I have turned to Alzheimers Asso and to Alz & Dementia Alliance of Wisconsin and ADRC (Aging & Disability Resource Center) in Madison and expect feedback from a specific person in Alz Asso who called & said she will email me with ideas and support, but I can hardly remember what steps I’ve taken or whom I have talked to for help. I live in a mental fog.

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Wow, that is hard to hear. Wish you all the best!

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@carolee888

Hi Emylainder,
I received your post. A whole lot has happened to your husband since May. I hope for your continued support from your son and his wife. And for the best for your husband's health.

On 9/9/22, after a hard rain, we were told to evacuate from our apartment. The Fire Department was there and we only had a few moments to gather up some things and our pet bird to go to a motel. Two days ago, I was able to get my laptop and deleted 1,790 e-mails. We call every few days and they tell us when to call next. We are still taking it day by day in the motel room. Thank you for your update. It is good to touch bases with you.

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Thank God you are all Ok but it must be tough living in the motel. Hope you can get back home soon...good luck !

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@thisismarilynb

I just finished reading all the posts, but I do not think I belong here. I am much older than most of you. Tomorrow is my birthday. I will be 88 years old. I have noticed that I lose words. I thought this might be dementia, but after a while they come back again, so maybe it isn't. I have had a very rough time lately. Just over a year ago my husband of 59 years died. Shortly thereafter I had to have a complete hip replacement. I now have no fear of going to Hell when I die because it could not be worse than the "skilled nursing facility" I was sent to. I really have no idea how I survived it. I had my last physical therapy session last Wednesday. I have exercises I am supposed to do every day. Next appointment with ortho is January, 2023.

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You sound like a very strong person and hey, I'm 71 and lose words so don't worry about it. I am very sorry t read the your lost your husband and dad to deal with a hip replacement without him. My husband had 2 hips replaced and needed me very much. I'm sure it was very difficult for you. I hope that you have one or 2 people that you can talk to and gain support from even if it is in a small way. We all need someone to talk too. I wish you all the best...you are a real trooper!

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@casey1329

You sound like a very strong person and hey, I'm 71 and lose words so don't worry about it. I am very sorry t read the your lost your husband and dad to deal with a hip replacement without him. My husband had 2 hips replaced and needed me very much. I'm sure it was very difficult for you. I hope that you have one or 2 people that you can talk to and gain support from even if it is in a small way. We all need someone to talk too. I wish you all the best...you are a real trooper!

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Thank you for your kind words. At this time I am well into my 89th year and am still independent. I have had some therapy and she told me I have prolonged grief. Well, since I had a 59 year marriage I am not surprised I have prolonged grief. The other day I was out on an errand. I saw a stand of trees all in bloom. My husband loved to see them. And I just burst into tears. Things like that still get to me. I am mostly alone and that is by choice. I just don't feel like interacting with people. I saw my surgeon last month and he said the hip was fine. He also said he would see me next year. I reminded him about my age and said I may not be here next year. He just laughed. But when you read the obituaries I see where more and more people are drying in their 40's and 50's. I wonder if it is because of all this drug taking. I just don't take drugs even the medical kind. Maybe that's why I have lived so long.

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