← Return to Long Time Survivor With Concerns re Metastasis

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@gneiss50

The hematologist's PA called me yesterday with my scan results. I have small tumors in my liver and larger, more numerous tumors in my abdomen/pelvic area. I see the doctor next Thursday to talk about treatment. I like the way this clinic handles patients, but I still would feel better about going back to Mayo for a second opinion and treatment, especially if it involves surgery. I am relieved that the tumors had not spread to my chest area or other organs, but the liver tumors scare me. Thank you to all who post your own carcinoid travels here, and thank you, Teresa, for mentoring this group.

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Replies to "The hematologist's PA called me yesterday with my scan results. I have small tumors in my..."

@gneiss50

I am so pleased that you have had the additional tests as a follow up. The Dotatate scan is one of the best in detecting NETs. It will be good to follow up with the doctor and then with Mayo, if you feel more comfortable there.

I'm grateful that Mayo Connect has been helpful in encouraging you in this process. Lots of our members in the NETs discussion group have had NETs in the liver and with appropriate treatment they live with these tumors for many years.

Will you continue to post after your next appointment?