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Atypical lobular hyperplasia: Did you have surgery?

Breast Cancer | Last Active: May 14 6:45pm | Replies (89)

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@spinnerbait

First I want to wish you luck in your journey! March 2022 I was told had Alh from a core biopsy. I was told it had to be removed though was only .5cm. I asked for a MRI first to double check what was there. I was told it wasn’t needed. The dr that did the core biopsy put in marker. They put in a guide wire for the lumpectomy. The dr that put in the guide
wire went from the top of my chest to the lower end of my breast then directed the wire to make a circle within a circle to hit the small mass. They also could not find the marker. The surgeon took out 27 grams of my breast. That is equal to holding 27 Pennie’s in your hand or 5.5 cm by 3 cm by 3.5 cm. Plus because the
Y could not find the marker they took out 3 more specimens the smallest being 3 x 3 x 3. I was a 34B. I now have a 34 mini breast on my left size. Guess what they found!!! Nothing!!!!! I would not have any surgery again without an MRI. I’m now wondering if the pathologist was incorrect on what she reported. All they found was some radio scar. I was told by a plastic surgeon I would need several operations to make me whole again. All this for a pea size spot. Medicare will only cover 1 surgery. 70 percent of women with Alh will never get cancer. I wish I had read more before they rushed me into surgery. Alh means you have a chance of getting cancer maybe. Hugs and prayers for you!

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Replies to "First I want to wish you luck in your journey! March 2022 I was told had..."

@spinnerbait thank you for your response and I’m so sorry to hear about your experience. It sounds like a frustrating and unnecessary surgery that lead to an unwanted result. I appreciate your perspective. Hugs and prayers for you, too!