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@allanhamilton

Good Morning All! I was diagnosed with pancreatic adenocarcinoma in September 2022 - Stage 2b with some apparent involvement of a couple of lymph nodes. The condition was discovered while being diagnosed for blood in my urine. A CT scan indicated a "spot" on the tail of my pancreas and I was immediately given the enzyme test which came back at just over 3000. The size and location of the lesion was confirmed by MRI. The size of the lesion was described as 3 x 5cm. I was referred to Emory University and Dr. Sarmiento who invented an endoscopic procedure for biopsy and eventual removal of the offending portion of the organ. The plan of action was to enter chemotherapy with the goal of reducing the lesion size for eventual removal. In November, I had 8 rounds of intense chemo with PALONOSETRON HCL, FLUOROURACIL, IRINOTECAN, and OXALIPLATIN. The results were not optimal...no reduction in lesion size but there was a small decrease in the enzyme assay. I've been moved to "palliative" care and have entered a second (6) infusion round of chemo with a completely different set of drugs - the names of which escape me at the moment!. I had new MRI imaging done in January and it's results indicated some small liver involvement. The small liver spot adjacent to the lesion became a problem when my surgeon indicated that I was no longer a candidate for the surgical procedure. As of today, I remain pain free and have never had any of the dire side effects of the chemo drugs. We are continuing treatments aided with lots of prayer that hopefully will further decrease my enzyme count.

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Replies to "Good Morning All! I was diagnosed with pancreatic adenocarcinoma in September 2022 - Stage 2b with..."

Hi Allan,
Thank you for sharing. So sorry to hear about what you were going through! I am very interested to read about your medical experience. It means a lot to us!
I live in New Zealand.
I have just been diagnosed with a head of pancreas mass about 3,5cm and a splenic artery and vein thrombus early this week. But thank God no other organs involved.
My husband and me we are still under shock. We live and eat very healthy, no overweight, never drink or smoke.
We should meet the medical team in 2 weeks. I am anxious to hear what is going on.
We are wondering if we should come to Mayo clinic instead of being treated here...
I send you all my best wishes for a get well soon.

@allanhamilton
Hello, I assume you are in or near Atlanta as I am. I would strongly suggest a second opinion. I also went to Emory but then found a team elsewhere enthusiastic and committed to treat me successfully. I am now with Northside Liver and Pancreas center. I have decided to have liver surgery on the 20th. I know every case is different but I went to MD Anderson initially to confirm my diagnosis, consulted with Emory and ultimately decided not to be a number at Emory. Would be happy to talk directly if there is a way to share contacts. God bless you on your journey!!

Thank you for sharing your story. Hope you continue to feel well.