Hi, @cmiddlet I'm Scott and my MIL was diagnosed with LBD while my wife fought brain cancer, which gave her multiple dementia-like symptoms.

I fully recognize that each patient, their disease, journey, and caregiver are unique, I did want to share our experiences about your question about "what's wrong".

With my MIL, my FIL was in full denial and embarrassed to tell anyone at all for the first couple of years that anything was wrong with his wife. Interestingly when he finally did open up, every one of those folks said "oh, we always knew something was wrong" so they knew all along and he ended up not having some folks help, who were willing to.

With my wife, it was a bit different. She was intensely private about her disease, symptoms, etc. I think this was basically due to the significant number of family and friends who ghosted on us due to her impaired mental/emotional abilities. I gave her the privacy she wanted and left disclosure up to her but did tell a few friends what her situation was when they eventually
approached me and asked, always in private.

The only "situations" we had were early on when my wife was able to go out with us in public and some uncaring individuals would feel the need to comment about my wife, within earshot of her and our family. The first time this happened our son was with us and quite publicly ripped into the guilty party regarding their lack of courtesy (to put it mildly). Interestingly, after that when it happened again, she must have taken heart in our son's example and it was my wife who would rear back and unceremoniously and bluntly explain her situation.

Not sure if this is helpful or not, but wanted to share.

Strength, Courage, & Peace