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Surgery of PNET

Neuroendocrine Tumors (NETs) | Last Active: Apr 5, 2023 | Replies (18)

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@jadedprincess

Hello. I had a distal pancreatectomy with splenectomy. A common complication is a leak from the pancreas. This is something I experienced and a drain was put in to deal with this. I had the drain for about 2 months. It was inconvenient but manageable. You can expect a "paralysis" of the stomach for about three months. I did mostly a liquid diet and had to force myself to even do that due to lack of appetite. But this will pass. You will need alot of rest to recuperate. My advise is to be positive and be patient. Healing takes time and sometimes there are bumps in the road. I'm 100% better now with a small scar. I hope everything goes great for you. Hugs!

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Replies to "Hello. I had a distal pancreatectomy with splenectomy. A common complication is a leak from the..."

@jadedprincess thank you for sharing your story with me. This has been very challenging for me to deal with. The anxiety is overwhelming and the thought of having to deal with a drain tube is over the top. I’m about 2 weeks away from surgery and I have to say it tough coping with not only having cancer but having this surgery as well. Thank you again for the information.

Hello @jadedprincess,

You offer some invaluable advice to those anticipating pancreatic surgery or a splenectomy. Your post represents the value of a patient-to-patient conversations like this.

How long did it take you to resume a normal diet?