Wow. I also just went through all the GCA tests. Biopsy came back negative and Rheumatologist says it is not definitive, but I have been on Pred for over a year now. At the ER I was put on 60 mg Pred as a precaution. That was Jan 21. Rheumy has started weaning to 50 already. I only dropped it to 55 mg. as I want to ensure that I notice ANY symptoms returning. Opthamologist said no significant change in eyesight, except for a wee bit of growth in cataracts. So grateful for this. Also was diagnosed by my dentist yesterday, with actute TMJ presenting with extreme pressure in the head, i.e. between the ears with deafness in the left and tinnitus and also tinnitus in the right ear, jaws cracking and difficulty swallowing. He is recommending a bite plane to get jaw back in alignment. TMJ was not a huge issue in past years, but suddenly reared it's ugly head around the same time as the ER visit, with the head pressure and hearing issues, which have not dissipated, even while on 60 mg. Pred. ER doc looked in my ears and said no infection and yet here we are with the pressure remaining. So I guess my question is: "Is it GCA or TMJ causing the jaw pain? There is a pain just above my forehead, when I lightly touch a spots along my eyebrows. It does not hurt to the touch, it's almost a referred pain from a nerve along the brow. Not in the temporal zone. Dentist says it is the muscle that supports the jaw. Surgeon says it could be a symptom of GCA. I am reluctantly weaning at this point, because the concensus from most Rheumatologists is "let's get to 1 mg." and those were her words the other day. I was at 14 mg. Pred. prior to ER visit. Does anyone really know anything about PMR/GCA or is it a "fake it until" scenario? Side note: I have also done something to lower back, hip and down the outside of my right leg. Referred for a CTScan (in Nova Scotia that maybe some time within the next 6-12 months. Maybe PMR related sciatica, but extremely limited in what I can do at this point. Rheumy says this is something the GP should assess - not her. GP is a quack-a-doo. Self advocate here.